Select Publications From ECHO Research
ECHO Research uses knowledge translation to improve health outcomes for children. Select publications can be found here so you can read more about our work. To see the free health resources we develop, visit our resources page.
2026
Erdmann, G., Brooks, H.M., Hartling, L., Scott, S.D. (Published 28 January 2026). Parents’ experiences and information needs in the management of their child with intellectual developmental disorders in Canadian emergency departments: A qualitative descriptive study. Journal of Patient Experience. https://doi.org/10.1177/23743735251415090
2025
Crockett, L., Driedger, S.M., Scott, S.D., Loftsgard, K.C., Sibley, K.M. (Published 29 August 2025). ‘There has to be some chemistry there’: an interpretive description exploring the experiences, motivations and dynamics of partnered child health research. Research Involvement and Engagement. https://doi.org/10.1186/s40900-025-00777-1
Husted, M., Dowrick, A., Porter, R., Higueras, M. V., Whitmore, C., Evered, J., Kennedy, M., Scott, S.D. (Published 02 July 2025). Imposter Participants in Synchronous Qualitative Research: A Systematic Scoping Review. International Journal of Qualitative Methods. https://doi.org/10.1177/16094069251342542
Louie-Poon, S., Richter, S., Kunyk, D., Scott, S.D. (Published 17 March 2025). A narrative inquiry of East Asian parents and mental health in Canada: Critical openings for anti-racism strategies in knowledge translation. Canadian Journal of Nursing Research. https://doi.org/10.1177/08445621251322552
Ali, S., Rahimi, A., Rajagopal, M., Ma, K., Yaskina, M., Clerc, P., Stang, A., Beer, D., Poonai, N., Principi, T., Gardner, K., Wright, B., Plint, A., Gouin, S., Schreiner, K., Scott, S.D., & the Pediatric Emergency Research Canada Family Needs study team. (Published 09 January 2025). A national survey of caregiver needs and experiences when attending the emergency department. Pediatric Emergency Care. https://doi.org/10.1097/PEC.0000000000003327
2024
Elliott, S., Bialy, L., Scott, S.D., Hartling, L. (Published 22 July 2024). Exploring methods for creating or adapting knowledge mobilization products for culturally and linguistically diverse audiences: a scoping review. Archives of Public Health, 82, 111. https://doi.org/10.1186/s13690-024-01334-0
Ali, S., Jensen, K.V., Morrison, A., Ma, K., Alqurashi, W., Erickson, T., Curran, T., Goldman, R.D., Gouin, S., Kam, A., Poonai, N., Principi, T., Scott, S.D., Stang, A., Candelaria, P., Schreiner, K., Yaskina, M. (Published 27 September 2024). Low caregiver health literacy is associated with non-urgent pediatric emergency department use. Canadian Journal of Emergency Medicine (CJEM). https://doi.org/10.1007/s43678-024-00771-8
Elliott, S.A., Rahman, S., Scott, S.D., Craig, W., Knisley, L., Shearer, K., Hartling, L. (Published 19 June 2024). Seeking care for children with intellectual and/or developmental disabilities in the emergency department: A mixed methods systematic review of parents’ experiences and information needs. Open Access Emergency Medicine, 16, 117-131. https://doi.org/10.2147/OAEM.S450191
Cunningham, C., Conway, J., Zahoui, Z., Haykowsky, M., Scott, S.D. (Published online 28 May 2024). Exploring Caregiver Learning and Experiences Caring for a Child with Heart Failure: A Qualitative Study. CJC Pediatric and Congenital Heart Disease, 3(4), 152-160. https://doi.org/10.1016/j.cjcpc.2024.05.003
Dobson, L., Milne, E., Campbell, A., Mrklas, K., Wasylak, T., Scott, S.D., Flynn, R. (Published 29 April 2024). The Use of Patient Stories as a Knowledge Translation Strategy to Facilitate the Sustainability of Evidence-Based Interventions (EBIs) in Healthcare. Patient Experience Journal, 11(1), 33-41. https://doi.org/10.35680/2372-0247.1861
Louie-Poon, S., Reid, K., Appiah, P.O., Hartling, L., Scott, S.D. (Published 02 April 2024). “There is a strangeness in this disease”: A qualitative study of parents’ experiences caring for a child diagnosed with COVID-19. PLOS ONE. https://doi.org/10.1371/journal.pone.0300146
Deschenes, S., Kunyk, D., Scott, S.D. (Published 22 March 2024). Developing an Evidence-and-Ethic Informed Intervention for Moral Distress. Nursing Ethics. https://doi.org/10.1177/09697330241241772
Bialy, L., Elliott, S.A., Melton, A., Ali, S., Scott, S.D., Knisley, L., Hartling, L. (Published 19 March 2024). Consequences of the Coronavirus disease 2019 pandemic on child and adolescent mental, psychosocial, and physical health: A scoping review and interactive evidence map. Journal of Child Health Care. https://doi.org/10.1177/13674935241238794
Elliott, S., Hartling, L., Knisley, L., Wright, K., Scott, S.D. (Published 22 February 2024). “It’s quite a balancing act”: a qualitative study of parents’ experiences and information needs related to the COVID-19 pandemic. Health Expectations, 27(1), e13994. http://doi.org/10.1111/hex.13994
Hartling, L., Elliott, S.A., Mabbott, A., Leung, J., Shearer, K., Smith, C., Scott, S.D. (Published 28 January 2024). Four year evaluation of a parent advisory group to support a research program for knowledge translation in child health. Research Involvement and Engagement, 10(14). https://doi.org/10.1186/s40900-024-00547-5
2023
Knisley, L., Driedger, S. M., Hartling, L., Chartrand, F., Sanguins, J., & Scott, S.D. (Published 06 December 2023). We’re here too: child health information-seeking experiences and preferences of Red River Métis families – a qualitative study. International Journal for Equity in Health, 22(1), 252. https://doi.org/10.1186/s12939-023-02069-0
Elliott, S., Scott, S.D., Wright, K.S. Hartling, L. (Epub 16 October 2023). Establishing priorities in child health: Giving parents and youth a voice. Journal of Child Health Care. https://doi.org/10.1177/13674935231205041
Hartling, L., Elliott, S., Munan, M., Scott, S.D. (Published 25 May 2023). Web-based Knowledge Translation Tool for Parents about Pediatric Acute Gastroenteritis: A Pilot Randomized Trial. JMIR Formative Research. http://dx.doi.org/10.2196/45276
Knisley, L., Linton, J., Driedger, M., Hartling, L., Sun, C., Scott, S.D. (2023). Examining the experiences of Indigenous families seeking health information about caring for sick or injured children: a scoping review. BMJ Open, 13(3), e069697. http://dx.doi.org/10.1136/bmjopen-2022-069697
2022
West, C., Rieger, K., Kenny, A., Chooniedass, R., Mitchell, K., Klippenstein, A.W., Zab orniak, A., Demczuk, L., Scott, S.D. (2022). Digital storytelling as a method in health research: A systematic review. International Journal of Qualitative Methods, 21. https://doi.org/10.1177%2F16094069221111118
Louie-Poon, S., Idress, S., Plesuk, T., Hilario, C., Scott, S.D. (2022). Racism and the Mental Health of East Asian Diasporas in North America: A Scoping Review. Journal of Mental Health, 1-16. https://doi.org/10.1080/09638237.2022.2069715
Elliott, S., Gaudet, L., Hogue, K., Scott, S.D., Hartling, L. (2022). Acute Pediatric Cannabis Intoxication: A Scoping Review. Journal of Child Health Care. https://doi.org/10.1177/13674935221099158
Elliott, S.A., Wright, K.S., Scott, S.D., Mohamed, M., Farah, A., Hartling, L. (2022). Adapting Child Health Knowledge Translation Tools for Somali Parents: Qualitative Study Exploring Process Considerations and Stakeholder Engagement. JMIR Form Res, 6(4), e36354. https://doi.org/10.2196/36354
Campbell, A., Scott, S.D., Hartling, L., Plourde, V. (2022). Parental Knowledge, Self-confidence, and Usability Evaluation of a Web-Based Infographic for Pediatric Concussion: Multimethod Study. JMIR Pediatrics and Parenting, 5(2), e36317. https://doi.org/10.2196/36317
Elliott, S.A., Wright, K., Scott, S.D., Hartling, L. (2022). Perspectives From French and Filipino Parents on the Adaptation of Child Health Knowledge Translation Tools: Qualitative Exploration. JMIR Formative Research, 6(3), e33156. https://doi.org/10.2196/33156
Cunningham, C., Sung, H., Benoit, J., Conway, J., Scott, S.D. (2022). Multimedia Knowledge Translation Tools for Parents about Childhood Heart Failure: An Environmental Scan. JMIR Pediatrics and Parenting, 5(1), e34166. https://doi-org.login.ezproxy.library.ualberta.ca/10.2196/34166
Rahman, S., Scott, S.D., Hartling, L., Elliott, S. (2022). Children at risk of anaphylaxis: A mixed studies systematic review of parents’ experiences and information needs. PEC Innovation, 1. https://doi.org/10.1016/j.pecinn.2022.100018
Louie‐Poon, S., Hilario, C., Scott, S.D., Olson, J. (2022). Toward a moral commitment: Exposing the covert mechanisms of racism in the nursing discipline. Nursing Inquiry, 29, e12449. https://doi.org/10.1111/nin.12449
Sung, H., Brooks, H.M., Hartling, L., Scott, S.D. (2022). Evaluating a social media campaign for a parent educational video on bronchiolitis. Spectrum: Interdisciplinary Undergraduate Research, (8). https://doi.org/10.29173/spectrum154
Campbell, A., Plourde, V., Hartling, L., Scott, S.D. (2022). “You can’t fix your brain”: Exploring concussion experiences of children and parents. Journal for Specialists in Pediatric Nursing, e12357. https://doi.org/10.1111/jspn.12357
Elliott, S., Shulhan-Kilroy, J., Scott, S.D., Hartling, L. (2022). Parents’ self-reported experiences and information needs related to acute pediatric asthma exacerbations: a mixed studies systematic review. PEC Innovation, 1. https://doi.org/10.1016/j.pecinn.2021.100006
2021
Benoit, J., Hartling, L., Chan, M., Scott, S.D. (2021). Characteristics of Acute Childhood Illness Apps for Parents: Environmental Scan. JMIR, 23(10), e29441. https://doi.org/10.2196/29441
Campbell, A., Plourde, V., Hartling, L., Scott, S.D. (2021). “You can’t fix your brain”: Exploring concussion experiences of children and parents. Journal for Specialists in Pediatric Nursing, e12357. https://doi.org/10.1111/jspn.12357
Knisley, L., Le, A., Scott, S.D. (2021). An online survey to assess parents’ preferences for learning about child health research. Nursing Open, 0(0):1-9. https://doi.org/10.1002/nop2.1027
Louie-Poon, S., Hilario, C., Scott, S.D., Olson, J. (2021). Towards a moral commitment: exposing the covert mechanisms of racism in the nursing discipline. Nursing Inquiry Special Issue on Anti-racism, e12449. http://doi.org/10.1111/nin.12449
Chan, M., Scott, S.D., Campbell, A., Elliot, S., Brooks, H., Hartling, L. (2021). Research and health-related youth advisory groups in Canada: An environmental scan with stakeholder interviews. Health Expectations, 1-17. http://doi.org/10.1111/hex.13316
Djkowich, M., Olmstead, D., Castro-Codesal, M., Scott, S.D. (2021). Who is using non-invasive ventilation? A descriptive study examining the population enrolled in a pediatric non-invasive ventilation program. Journal for Specialists in Pediatric Nursing, 26(3), e12326. https://doi.org/10.1111/jspn.12326
Deschenes, S., Tate, K., Scott, S.D., Kunyk, D. (2021). Recommendations for navigating the experiences of moral distress: a scoping review. International Journal of Nursing Studies, 122. https://doi.org/10.1016/j.ijnurstu.2021.104035
Hartling, L., Elliott, S., Buckreus, K., Leung, J., Scott, S.D. (2021). Development and evaluation of a parent advisory group to inform a research program for knowledge translation in child health. Research Involvement and Engagement, 7(1), 38. https://doi.org/10.1186/s40900-021-00280-3
Louie-Poon, S., Rehmani, M., Kennedy, M., Scott, S.D., Salami, B., Vallianatos, H., Meherali, S. (2021). Understanding sexual and reproductive health needs of immigrant adolescents in Canada: A scoping review. Canadian Journal of Human Sexuality, e20210006. https://doi.org/10.3138/cjhs.2021-0006
Campbell, A., Hartling, L., Louie-Poon, S., Scott, S.D. (2021). Exploring the experiences and information needs of parents caring for a child with a urinary tract infection: A qualitative study. Journal of Patient Experience, 8: 1-8. https://doi.org/10.1177%2F23743735211008299
Thompson, A., Wine, E., MacDonald, S., Campbell, A., Scott, S.D. (2021). Parents’ experiences and information needs while caring for a child with functional constipation: A systematic review. Clinical Pediatrics, 60(3): 154-169. https://doi.org/10.1177/0009922820964457
Meherali, S., Hartling, L., Campbell, A., Featherstone, R., Scott, S.D. (2021). Parent information needs and experience regarding acute otitis media in children: A systematic review. Patient Education and Counseling, 104(3): 554-562. https://doi.org/10.1016/j.pec.2020.09.013
Meherali, S., Scott, S.D., Hartling, L. (2021). Cultural adaptation of digital knowledge translation tools to improve child health outcomes in low-middle-income countries: A mixed-methods usability evaluation. JMIR Formative Research, 5(1): e13908. https://doi.org/10.2196/13908
Thompson, A., MacDonald, S., Wine, E., & Scott, S.D. (2021). Understanding parents’ experiences caring for a child with functional constipation: interpretive descriptive study. The Patient: Patient-Centred Outcomes Research. JMIR Pediatrics and Parenting, 4(1): e24851. https://doi.org/10.2196/24851
2020
Ali, S., Manaloor, R., Ma, K., Sivakumar, M., Beran, T., Scott, S.D., Vandermeer, B., Beirnes, N., Graham, T.A.D., Curtis, S., Jou, H., Hartling, L. (2021). A randomized trial of robot-based distraction to reduce children’s distress and pain during intravenous insertion in the emergency department. CJEM, 23(1), 85-93. https://doi.org/10.1007/s43678-020-00023-5
Campbell, A., Hartling, L., Louie-Poon, S., Scott, S.D. (Dec 2020). Parent experiences caring for a child with bronchiolitis: a qualitative study. Journal of Patient Experience, 7(6): 1362-1368. https://doi.org/10.1177%2F2374373520924526
Ali, S., Ma, K., Dow, N., Vandermeer, B., Scott, S.D., Beran, T., Issawi, A., Curtis, S., Jou, H., Graham, T.A.D., Sigismund, L., Hartling, L. (2020). A randomized trial of iPad distraction to reduce children’s pain and distress during intravenous cannulation in the pediatric emergency department. Paediatrics & Child Health, 26(5): 287-293. https://doi.org/10.1093/pch/pxaa089
Thompson, A., MacDonald, S., Wine, E., Scott, S.D. (2020). An evaluation of parents’ experiences of patient engagement in research to develop a digital knowledge translation tool: Protocol for a multi-method study. JMIR Research Protocols, 9(8): e19108. https://doi.org/10.2196/19108
Elliot, S., Dyson, M., Wilkes, G.V., Zimmerman, G., Chambers, C., Wittmeier, K.D.M., Russell, D.J., Scott, S.D., Thomson, D., Hartling, L. (2020). Engagement, dissemination and dialogue using social media: considerations for health researchers. JMIR, 22(7): e15121. https://doi.org/10.2196/15121
Lefebvre, D., Le, A., Spiers, J., Scott, S.D. (2020). Exploring the needs of parents with a child with chronic pain: a qualitative secondary analysis. International Journal of Nursing Student Scholarship, 7. https://journalhosting.ucalgary.ca/index.php/ijnss/article/view/70324
Thompson, A.P., Nesari, M., Hartling, L., Featherstone, R., Scott, S.D. (2020). Parents’ experiences and information needs related to childhood fever: a systematic review. Patient Education and Counselling, 103(4): 750-763. https://doi.org/10.1016/j.pec.2019.10.004
ECHO
The ECHO research program is focused on improving health outcomes for children with acute health conditions through the application of the best available evidence — a process known as knowledge translation (KT).